Eating and Drinking
The goal of these eating and drinking supplies are to help the person with PSP maintain as much independence as possible. These adaptive tools also reduce the level of assistance needed from caregivers.
Adult Bib: Due to challenges with movement and coordination, eating can become messier for people with PSP. Adult bibs help protect clothing, make cleanup easier, and provide a sense of dignity during meals.
Weighted Utensils: These utensils are designed with added weight to improve grip and control. This allows for easier grip and allows a person with PSP to continue to feed themselves with less difficulty.
Adaptive Plates: These plates feature raised edges to make it easier for someone with PSP to scoop food onto their utensil by themselves. These plates sometimes have non-slip bases.
Adaptive Cups: Adaptive cups are used to prevent spills and assist in regulating fluid intake. These cups can be used in addition to liquid thickeners.
Adult Bib
Weighted Utensils
Adaptive Plates
Adaptive Cup
Eyes
PSP significantly affects the eyes. Common eye symptoms include light sensitivity, difficulty keeping eyes open, trouble focusing the eyes, and severe dry eyes.
Eye Drops: People with PSP often experience extremely dry eyes. Eye drops lubricate the eyes and help keep discomfort at bay. These eye drops may be prescription, over the counter, or a combination of both.
Large Print Books: As the disease progresses, individuals with PSP lose the ability to focus on smaller print. Large print books, activity books, and audiobooks help provide entertainment to people living with PSP and can be used by their caregiver to occupy time.
Wide Brim Hat and Sunglasses: People with PSP tend to be very sensitive to light (both artificial and natural). Wide brim hats and dark tinted sunglasses help a person experience more comfort when outside and help him or her to see better.
Night Light: Falls are one of the most deadly factors in PSP. A night light helps make night time trips to the bathroom safer by improving visibility.
Eye Drops
Large Print Books
Wide Brim Hat and Sunglasses
Night Light
Bathroom Supplies
The bathroom is one of the most hazardous places in any building, regardless of any diagnosed illnesses. The combination of water and slippery surfaces makes the bathroom especially dangerous for those with PSP. Fortunately, there are many bathroom supplies that can make the bathroom safer, with a sample noted below.
Shower Chair or Tub Bench: As mobility declines, it can become difficult for a person with PSP to bathe safely. A shower chair or a tub bench helps to make this safer by providing stability and support. If transferring into a shower from a wheelchair is needed, a swivel shower chair allows the caregiver to safely transfer their loved on to the chair and then turn the seat into the shower.
Grab Bars: Grab bars make it safer for your loved one to navigate the bathroom and provide a sturdy place for them to grab.
Toilet Riser: A toilet riser makes it easier for someone with PSP to sit down and stand up from the toilet.
Handheld Shower Head: A handheld shower head allows a person with PSP to bathe themself while they are seated in a shower chair. As the disease progresses, it also enables caregivers to reach all necessary areas without getting wet.
Shower Chair or Tub Bench
Grab Bars
Toilet Riser
Handheld Shower Head
Hygiene Supplies
Disposable Dental Swabs: These swabs are ideal for maintaining oral hygiene for loved ones who are bedbound or have difficulty brushing their teeth independently.
Non-Fluoride Toothpaste: Non-Fluoride toothpaste is a safer alternative for your loved one, especially when they are bedbound and may struggle to completely spit out toothpaste after brushing.
Bathing Cloth: When bathing in the bathroom becomes unsafe, many PSP patients need to be bathed in bed. A tub with soap and water works well for deep cleaning, but bathing cloths are great for use in between more comprehensive washings.
Rinse Free Shampoo Cap: Rinse Free shampoo caps can be used for those who need to be bathed in bed. They are a great alternative to washing with water and standard shampoo, but extensive use may result in an itchy skull. Once a month, try and wash your loved one hair with regular shampoo and rinse with water.
Adult Diapers: Incontinence is common with PSP. Adult diapers help manage this issue. Adult diapers should be used alongside a barrier cream, such as Balmex, to prevent skin sores and rashes.
Underpads: Underpads are placed on the bed sheets to protect them from incontinence, making cleanup easier and keeping the bed dry.
Disposable Dental Swabs
Non-Fluoride Toothpaste
Bathing Cloth
Rinse Free Shampoo Cap
Adult Diapers
Underpads
Mobility
Walker: Walkers help prevent falls and provide a level of mobility for individuals with PSP. There are multiple different models and types of walkers and the choice of which one is appropriate should be made with the help of a physical therapist, occupational therapist, or a doctor.
Standard Wheelchair: A standard wheelchair is used when it becomes too difficult or unsafe for your loved one to walk. It can also be used if you are doing more vigorous activity that may result in your loved one fatiguing easily.
Transfer Wheelchair: Transfer wheelchairs are often easier to use at home, especially in older houses with narrow doorways that standard wheelchairs cannot pass through. These chairs are narrower and more maneuverable in tight spaces.
Mobility Ramp: Mobility ramps improve access to the home. It is important to ensure that ramps are installed at an appropriate, ADA compliant angle to maximize safety.
Walker
Standard Wheelchair
Transfer Wheelchair
Ramp
Alert System
Image Source: CallToU
This pager system (or a similar one) can be used to alert you when your loved one needs assistance. It provides a quick and reliable way to communicate, especially if your loved one has difficulty speaking or if you are in a different part of the house. These systems include a wearable button or remote that the person with PSP can press to send an alert to the caregiver’s receiver. This helps ensure timely support while allowing your loved one to maintain some independence and reduces the need for constant supervision.
Many pager systems are simple to use, require minimal setup, and can greatly increase peace of mind for both the caregiver and the person receiving care.
All the items listed on this page are ones I’ve used to care for my mom. Each has been incredibly helpful, but the paging system has been invaluable. My mom is currently bedbound and speaks very softly. The pager system alerts me when she needs something if I’m not close enough to hear her and even wakes me up if I’m sleeping. This paging system is different from emergency button systems that notify 911 services in case of falls or other emergencies.