When the doctor told my family that my mom was eligible for hospice care, I felt a wave of emotions. I had always believed that hospice meant death was imminent, and I was heartbroken at the thought that my mom had so little time left. However, I quickly learned that hospice is so much more than I had imagined.

As of this writing, my mom has been on hospice for a little over a month. Her pain is well managed and she’s able to rest comfortably. Her vital signs remain stable, even though she has stopped most of her medications. She now uses oxygen, and thanks to the portable oxygen system hospice provided, we’re still able to get her out of bed and even take short walks outside.

I understand that hospice will not cure my mom and that she will eventually pass from PSP. But during this time, hospice has brought immense comfort to her and to all of us. They’ve provided everything she needs, from a hospital bed and medications to compassionate care. A nurse we deeply trust visits regularly, and we’re incredibly grateful for the home health aide who comes multiple times a week to bathe her. Our family is supported by a kind social worker and offered spiritual guidance from a local priest.