Hello! My name is Kait, and I’m the primary caregiver for my mom, who was diagnosed with Progressive Supranuclear Palsy (PSP) in August 2024. When we first received the diagnosis, I turned to books and the internet in search of answers. What I found was an overwhelming amount of clinical information, but very little guidance for caregivers like me. I quickly felt lost and overwhelmed.
Those feelings are why I created this guide. What began as a capstone project for my Master’s program soon became something deeply personal: the resource I wish I’d had at the start of this caregiving journey.
This guide blends trusted scientific information with the real-life experiences of my family. My goal is to offer practical insights, emotional support, and a sense of community for other caregivers navigating life with a loved one diagnosed with PSP.
Caregiving for someone with PSP can be an isolating experience. My hope is that this guide provides not only practical tools and knowledge, but also a sense of connection and comfort. You’re not alone in this.
Whether you’re just starting this journey or have been walking it for a while, I hope this guide helps you feel more prepared, informed, and supported. In addition, if you ever want to share your story or connect, I’d love to hear from you.